Blog Layout

Xpanding Joy: 27

Apr 22, 2016

Market America WebCenters

I started getting visions of something before Moriah was born. I never understood them clearly but after her diagnosis, I began getting them again. I began seeing something big happening. I spent a lot of time telling God no. I didn’t understand the vision or why me. I didn’t feel equipped to do things I felt God putting on my heart. I would negotiate with God. And I would question, What if I just don’t do it? I know God was asking me to step out of the places I was comfortable and into an unknown journey…with Him. I resisted everyday. I pleaded for God to send help, someone else. And then after a lot of prayer, reading about some pretty cool people in the Bible that didn’t feel equipped for God’s plan, and seeking wise counsel in some of my most prayerful friends/family…I agreed.

This last sentence is so not adequate for the amount of time I spent pursuing truth and putting God on hold, so I will give you an example of how God spoke truth into me when I was so desperately searching for it. At Easter church service of all times, but also the day after seeing a video of an older girl with Moriah’s deletion which hit me hard, our amazing Pastor Rick was talking about one of the visions Ezekial was given, ch.37. Ezekial had been taken out of his home land by the Spirit of the Lord  and set in a valley of dry bones, death, loss, mourning so overtaking. And God asked him, “Can these bones live?” Rick reminded us that when God or Jesus asks a question, it isn’t for His knowledge, but to reveal to us. So here, the question is really, “Do you believe?” Do I believe God can breathe His life into ANYTHING, ANWHERE His Spirit is bringing me to??”

I submitted to God’s plans, which I know are better than my own. I believe He can make anything come to life. And with His guidance I prayed for everyday, I started working toward the vision of something that would leave me completely dependent on Him.

As I pursued healthcare and treatment options for my daughter and scientific research on her deleted genes, my eyes were being opened to the needs in these areas. As I was being welcomed into support groups for moms of kids with special needs, I heard their plights and felt their frustrations. And I felt God positioning me to help, in ways I never dared dream.

But just as I let you all in on this, I know their is such a risk. Of failing. Of exposure. Of fears I have never experienced. Of time and money and time. Yes, I meant to put that twice. I am not a known risk taker. I am known as the motherly, planned, rule-follower. And safety is key in all of that. I am safe. I don’t take risks. I make due with what I have and find happiness wherever I am. I would dare say my husband is similar. We have been married, worked and live in the same home for 17 years. You get me? We don’t rock the boat. I don’t rock the boat. I like this trait in me. But God says, (and I am paraphrasing) “let me work through your weakness.”  (2Corinthians 12:9) He is teaching me to want more and dream bigger.

He loves me enough to help me grow into something else He wants for me. And He isn’t going to stop until He is finished (Philippians 1:6).

So I am taking a leap of faith. And my husband too. We knew when God asked us to adopt and we accepted His will, we were showing God we could be trusted to continue to follow Him. We knew we would be stretched, expanded into other areas. So the time has come for our next calling. We feel called to start something new… A foundation for Moriah’s rare X chromosome deletion.

When we said yes, we didn’t fully know the plan. We still don’t know exactly how we can help, what raising money will do, but God is teaching us more about trust and His power. He is teaching us to dream bigger, do bigger, love more. He knows the JOY Moriah brings to so many and is X-panding that JOY to reach more. We have a small view of the plan and keep getting more of the picture as God reveals more to us. Stay tuned. It’s going to be good.

 

 

By Market America WebCenters 04 May, 2023
My name is Amy. I have a daughter! For the longest time, I didn’t think I would ever say those words. And I had reconciled that notion. I had three perfect, healthy, wild, adorable boys. And then my tubes tied! Right, I mean I wasn’t going for a basketball team. And even if I was okay with that, my body seemed to reject recovering from any more after the three cesarean births and subsequent infections. But then something amazing happened, God spoke to my family. He spoke straight to our hearts and then gently awoke us to promises and hopes only He could provide in His perfect timing. Some days it felt like he was jumping up and down, waving his hands, saying “look what you can do…with me” and performing modern-day miracles– until we couldn’t deny the longing and call for our lives. And we are sooooo grateful. I am so very thankful. I want to share her story, because it is beautiful.  Because I feel so blessed to be chosen by God and I know that God calls us all in different ways. I hope you will not only be blessed to know more about the adoption that changed our life, but you will be encouraged to discover the message that brings Joy for you.
By Market America WebCenters 18 Oct, 2016
Xtreme Science mode is happening! One of my scientific advisors and good friends, Dr. Leylah Zeek, is attending the NORD conference in DC with me right now. NORD is the National Organization for Rare Disorders. This meeting is the Breakthrough Summit on Orphan Products for Rare Diseases. There are nearly 600 attendees representing patient advocacy […]
By Market America WebCenters 13 Aug, 2016
CELEBRITY! So many people have called me a celebrity lately thanks to the local news piece that covered our story of rare chromosome disorder diagnosis. It got me thinking. And laughing out loud. Celebrity. That is the last thing I ever dreamed of. And especially not for this reason–a child with great need. Now I […]
By Market America WebCenters 10 Jun, 2016
I am turning 40 this month and I have been reflecting on my life. I don’t think it is coincidence that I feel a stronger sense of purpose this year, with the start of Xtraordinary Joy foundation.  Forty is a number that is used many times throughout the bible to signify a period of time, like […]
By Market America WebCenters 23 May, 2016
I am excited to write that this journey we have been on is beginning the next phase. I feel like we have run the adoption marathon and now are beginning an Ironman in Combatting rare  chromosome disorder. We know there are going to be blisters along the way but the prize is worth it. We […]
By Market America WebCenters 12 Apr, 2016
What if the questions that keep driving me for answers are not out of angst and worry but out of PURPOSE and JOY...My eyes are open- I know that it is well, it is well.
By Market America WebCenters 07 Feb, 2016
A month after our courtroom victory, there had been no appeal. We seemed to be in the clear. It felt good to breathe. That stress had been removed. But it was settling in that Moriah had some big challenges. Her physical therapy was progressing well. She was doing exercises to strengthen her muscles. And she […]
By Market America WebCenters 18 Jan, 2016
Justice is something I had to learn about in context of how God sees Justice. And trust was something I was learning to reserve for God and not man. I was desperate for His righteousness to prevail. I knew an injustice had been served to us by a judge that had felt injustice done to […]
By Market America WebCenters 13 Jan, 2016
“And let us run with endurance the race God has set before us.” –Hebrews 12:1 It felt like I was running that kind of a race this last year. It wasn’t long before though that I was training for running half marathons before an injury kept me from pursuing that passion. I thought about the […]
More Posts
Share by: