Xtraordinary Joy

Fighting Rare Genetic Disorders with Joy!

Xtraordinary Joy Homepage

Fighting rare genetic disorders withJoy!


We are a non-profit organization providing advocacy and funding for X-chromosome deletion research that advances lifelong health, behavior and learning.

Check out our Blog

Our Story

In 2014 we adopted Moriah Joy. Our story is one of patience, joy and unexpected discovery of a rare X chromosome deletion that has led to the formation of Xtraordinary Joy, Inc. Established in 2016, our vision for Xtraordinary Joy, Inc. is to raise funds that will promote clinical interventions, therapies and care opportunities for children afflicted by never-before-studied X chromosome deletions.

Donations Raised
  1. Our Fundraising

    for Xq27-q28 Deletion research at the University of Florida Medical Research Center
    $64,301.73 donated of $100,000.00 goal
Research at UF

University of Florida scientists are teaming up to examine the effects of gene deletion on biochemical pathways and attempt to rescue brain circuitry with targeted therapies.

Upcoming Events

View All Events

Faces of Xq27-q28 DELETION

Moriah Joy Meacham