Xtraordinary Joy

Fighting Rare Genetic Disorders with Joy!

Faces of Xq27.3-q28 DELETION



Alexa was born in Kansas but now lives in the Dallas, Texas area. She was diagnosed with her genetic deletion when she was over a year old. Alexa started walking when she was 2 and half years old but still has some physical disabilities because of her low muscle tone. She is also diagnosed with intellectual disability and had three seizures in 2009 and 2010. Alexa is very social and friendly. She has limited verbal communication but keeps progressing with new words and phrases. Some of her favorites are books, playing with baby dolls, going to school and church, and being around her little sister. 

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