Xtraordinary Joy

Fighting Rare Genetic Disorders with Joy!

Faces of Xq27.3-q28 DELETION



Amelia lives with her family in Arizona. She was diagnosed with her chromosome deletion when she was 18 months old and has since been diagnosed with autism, epilepsy and apraxia. She uses an augmentative communication device as she is nonverbal. She enjoys books and art. She is especially sweet and affectionate. She loves music and Barney the dinosaur. She is loved by everyone she meets.

Please follow and like us:
Learn more about Xq27.3-q28 DELETION