Xtraordinary Joy

Fighting Rare Genetic Disorders with Joy!

Faces of Xq27.3-q28 DELETION


Moriah Joy Meacham

Moriah Joy was adopted by Amy and Tony Meacham in 2014, and she lives with her family in Gainesville, Florida. Realizing a few months into Moriah Joy’s life that she was having some developmental and health issues, the Meachams were faced with an ambiguous diagnosis of an unnamed gene deletion disorder, known as Xq27.3-q28 Deletion. Despite her circumstance, Moriah’s smile and personality bring joy to everyone she meets! She hopes to spread this joy to others affected by rare genetic disorders, and acts as the face of the organization to help raise funds for research into her specific X-chromosome deletion.

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